Archive for the 'Uncategorized' Category
After 7 awesome days, at 7:00am (CT) Sunday morning; Amaya Faith went on to her eternal home in heaven to be with Jesus. With the bright sunny morning breaking on the horizon, Amaya Faith took her last breath right where she would have wanted to be; in the arms of her mother rocking her gently […]
Yeah, Amaya is one week old. How precious and beautiful she is. She had a little episode yesterday evening, but with a full blast of oxygen and some vigorous rubbing she started breathing again. She slept all night, making two great nights in a row. Praise God. She has had a great day with just […]
We had a wonderful photographer come up and take beautiful pictures of Amaya today. He was such a blessing. Click on the link to see them. Photo’s were taken by Rod Evans of Evan’s Photography of Sioux Falls.
View Photos
Sorry it has been so long since our last post. Wednesday night was really rough. Amaya crashed 3 times and the last time it took chest compressions to get her back. They say each time it is getting harder and harder to bring her back. We are continuing to do all of her medical care […]
OK, well 2 hours shy of being four days old, but close enough. Last night was a much better night. Amaya experienced a few d-stats, low oxygen, but nothing severe. She likes to suck her lower lip in and since her nasal passage is open to her mouth she blocks off her airway, we have […]
She has past the first statistic. She is now over three days old. She is such a blessing, we have spent much of the day holding her and cuddling close her. She is as sweet as can be and we are treasuring every moment. She gave us quite a few scares last night. She crashed […]
We have uploaded some photos of Amaya Faith. Click on the tab at the top named ‘Photos of Amaya’ to view them. We love you all, thank you so much!
View Photos
Amaya Fatih had a great night. She is on the lowest amount of oxygen possible and kept her levels up all night! God is awesome and we are blessed just to see how sweet she is. The doctors are still amazed at how well she is breathing on her own and are moving forward to […]
Amaya Faith has made her entrance into our world, she weighs 4lbs 5oz and is 17 1/2 inches long. After an ultrasound yesterday with very low fluid levels the doctor wanted to induce this morning. We thought we had another week and were a bit unprepared but couldn’t wait to welcome our sweet little girl. […]
Our little Amaya is still holding her own and suprised us with a 12 oz weight gain in just two weeks. She is up to 3lbs 14oz and is strong as always. Our ultrasound today showed the same findings, semilobar hpe, enlarged kidneys, bilateral cleft lip, but her heart still looks great. She […]
Welcome
You are currently browsing the Amaya Faith - Trisomy 13 weblog archives for the 'Uncategorized' category.
Longer entries are truncated. Click the headline of an entry to read it in its entirety.Archives
Categories
- Uncategorized (24)