3 Days Old

She has past the first statistic. She is now over three days old. She is such a blessing, we have spent much of the day holding her and cuddling close her. She is as sweet as can be and we are treasuring every moment. She gave us quite a few scares last night. She crashed 3 times and needed to be bagged and stimulated quite a bit to bring her stats back up, she also experienced 2 apnea episodes. She kept us on our toes all night, but has been having a very good day. Sleeping peacefully and snuggling close with us. Her chromosome test came back positive for full trisomy 13, the doctor’s told us this is what they expected all along, but it still came as a blow. She had her ultrasound that revealed a small simple cyst on her right kidney, that will need to be re-evaluated in 2-3 months. She also started and had two feedings yesterday that she tolerated well, but they have been discontinued until the doctors give the go ahead again. Please continue to pray for her, that she remains comfortable and strong. She has shown us that she is a fighter and we can see her precious spirit is full here. Thank you for all your prayers, comments and love.


One Response to “3 Days Old”  

  1. 1 Summer Jesse

    We are still here, praying for Amaya. I check to see if there’s any new information every hour. God has a plan for Amaya and no matter what it might be she was born and has showed more love and strenght than someone 2,433 times her age. (which is 20 yrs) Take Care and we will be praying that the day will come when she gets to go home. Summer and family

Leave a Reply